I am a 38 year old woman who was finally given a diagnosis. I have been waiting about 23 years to know what exactly was happening to me. I am not sure that I am happy with the answer.
The diagnosis is Pigmented Purpuria Dermatosis with Mycosis Fungoides overlap.
I am not sure what it all means yet, but so far I am scared. I have started treatment, which consists of narrowband UVB light treatment and twice daily application of a topical steroid. This is a pretty standard treatment, it seems.
I am being seen by a dermatologist and an oncologist. Hopefully, some of the questions I have will soon be answered by the doctors or my own research.
